Thursday, January 5, 2012

First post ever

So I am always reading my dear friends blog and some are good and some are bad.  This one will probably be bad, because I am going to explain a little about myself.  I have three kids and have been in a on and off relationship for six years.  In April of 2010 I got diagnosed with Friedreich's Ataxia. Lately we have been off mainly because long distance relationships never work.  So when I got my diagnoses I panicked and tried to push everyone away so when I did pass away people would not be so upset.  Don't ever do that it hurts more than you know.  I was really upset because the doctor said I had 12-22 years to live and I would be in a wheelchair in 5 years. Well I was overly depressed and did some things I should not have done.  As I learned more about what I had it got way easier to be like NO that is not going to be me. If you need more information about this go to the FARA page. 
So as the days went on I was going to 4 -5 doctors a week and getting poked and prodded.  It was great fun because I hate needles.  I have 2 neurologists, a cardiologist, a primary care doctor,a physical therapist, a counselor, and a pain specialist.  At that point I just wanted to get down to one appointment a week.  Now I am down to one appointment every other month.  I life in town now and am getting my life back.  The only thing missing is the on and off relationship.  He may not know it but I love him and plan on marrying him one day soon.

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